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A collection of blogs we find interesting, and NSDSS letters, responses, press releases, and articles.
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March 15, 2010
Dear Parents,
The Canadian Early Intervention Research Team needs your HELP!!
We are conducting a national study on the experiences and perceptions of parents of children with special needs in Early Intervention across Canada. We have constructed a survey that is being distributed to parents from across the country to determine how parents perceive services and supports in each respective province or territory.
The survey takes 15-25 minutes to complete and is available online at:
http://www.zapsurvey.com/Survey.aspx?id=e09fe4d1-7ff6-4926-b55a-1c88deb7a4f0
(English)
http://www.zapsurvey.com/Survey.aspx?id=6b0a779a-fcea-462f-b828-c773b44e2c4d
(Francais)
Please note, if you chose to complete the survey using the link above, the survey must be completed and submitted online at one sitting (i.e., you can not return to complete the survey at a later time).
Alternatively, the survey can be emailed or faxed to you or administered over the telephone by contacting the primary research associate, Jennifer Saracino at jennifer.saracino@mail.mcgill.ca or (905) 592-1523. Please feel free to email Jennifer a number and time when you can be reached if your preference is to complete the questionnaire over the phone.
In exchange for your participation, you will receive an extensive report on the services and experiences of other parents across Canada along with any additional resources that are compiled by the research team.
Sincerely,
Primary Investigator, Ingrid E. Sladeczek, PhD
School/Applied Child Psychology Program
McGill University
Phone: (514) 398-3450 Fax: (514) 398-6968
Email: ingrid.sladeczek@mcgill.ca
www.earlyinterventioncanada.com
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Petition 'Canada needs a prenatal diagnosis awareness act'
Since
February 2007, all pregnant women in Nova Scotia have been offered
prenatal screening by the province. These screening tests are not
designed to treat any condition, but are aimed at preventing conditions
such as Down syndrome, by preventing the birth of babies with this
condition. In Canada over 90% of parents terminate a pregnancy when
faced with a diagnosis of Down syndrome. The Nova Scotia Down Syndrome
Society has experienced a sharp reduction (of about 85%) in
registrations of new families during 2007.
The recent expansion
of prenatal screening has not been accompanied by an appropriate
expansion of counseling, information and education programs and is
leading to unjustifiable situations. As an organization, the Nova
Scotia Down Syndrome Society believes that non-directive and balanced
information about all options should be at the heart of prenatal screening.
NSDSS has created an online petition to
call for a 'Prenatal Diagnosed Condition Awareness Act'. This Act will
ensure prospective parents receive non-directive and balanced support
and information about the diagnosed condition of their child. This
could include experiences from persons living with Down syndrome and
their families.
Please sign our petition and forward this message to everyone who might be interested because every signature counts!
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