NON-PROFIT REGISTER | Denver-Based Foundation Helped Advocate For $ 15 Million In Funding Increase For Down Syndrome | New



New: The Global Down Syndrome Foundation celebrates the approval of a $ 15 million funding increase for the National Institutes of Health’s INCLUDE initiative.

INCLUDE (Investigating Co-Occurring Conditions Across the Lifespan to Understanding Down Syndrome) will fund what a spokesperson said are “some of the most neglected areas of research and care, such as health disparities for Afro-Americans. – Americans with Down syndrome, mosaic Down syndrome, those with the dual diagnosis of Down syndrome and autism, and new studies on the dysregulation of metabolic research.

Already, INCLUDE research has led to important discoveries in autoimmune diseases and Alzheimer’s cancer. INCLUDE is based in the office of the director of the National Institutes of Health in Washington, DC

Colorado reps Diana DeGette, Jason Crow, Ed Perlmutter and Doug Lamborn are among the World Congress champions and, along with the group’s international network of supporters, have helped push for increased funding.

About the organization: The Global Down Syndrome Foundation was established in 2009 by Starz founder John Sie and his wife Anna, following the birth of their granddaughter, Sophia Whitten, with Down syndrome. It is now the largest nonprofit in the country working to save lives and improve health outcomes for people with Down syndrome. Through fundraising efforts and private donations, Global has provided some $ 32 million to establish the Linda Crnic Institute at Children’s Hospital Colorado, supporting more than 400 scientists and more than 2,000 Down syndrome patients in 28 states and 10 countries. Global brings together 150 organizations with Down’s syndrome around the world. Its subsidiaries, in addition to the Crnic Institute, are the Sie Center for Down Syndrome and the University of Colorado Alzheimer’s and Cognition Center, all located on the Anschutz medical campus in Aurora.


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